I'm going to have a good ugly cry.. I went to Giant, I bought one (recycle bag) full of groceries. I should have divided them into two to begin with but that's not what I'm crying about. It's because that was the hardest task I have done in the past 4 years.
I thought I was supposed to feel better with this medication. This poison (milrinone) that I can't say no to. I KNOW I did too much. I am ashamed at myself for not allowing Tom to help out & saddened that I need him to function in every capacity that gets us through the day. While he graciously offers I can not give him so much of my labor, it only serves to make me feel that much sorrier for myself. I don't know what to do anymore.
I was able to thumb my nose at this disease up until about 4 months ago, steady decline in my health informed me of my arrogance & the need to stop playing the martyr role & allow ppl to help me out.
It's a natural instinct to try, I guess.
I need to honor my bodies shortcomings & respect where I am in this process. I simply can't do it anymore. I am my disease today. It has chewed me up and spit me out into a blubbering mess of self loathing tears. Frustration only scratches the surface of today's attempt at some sort of normal behavior. I was told to live while waiting for my call that a heart is there for me. I don't call this living.
What a sad entry, I'm hopeful you can understand even a wee bit & forgive me for the raw reality that is my life today..
How do I handle the progressive disease of my heart while awaiting a transplant?